SCDIC Publications

2020

Alberts N, Badawy SM, Hodges J, Estepp JH, Nwosu C, Khan H, Smeltzer M, Homayuni R, Norell S, Klesges L, Porter JS, Hankins JS. Development of a mobile app “InCharge Health” to improve adherence to hydroxyurea in sickle cell disease: A user-centered design approach. JMIR [pre-print]. doi: 10.2196/14884

Kanter J, Gibson R, Lawrence RH, Smeltzer MP, Pugh NL, Glassberg J, Masese RV, King AA, Calhoun C, Hankins JS, Treadwell M.Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care. JAMA Netw Open. 2020;3(5):e206016. doi:10.1001/jamanetworkopen.2020.6016 (JAMA Network Open)

Knisely MR, Pugh N, Kroner B, et al. Patient-reported Outcomes in Sickle Cell Disease and Association with Clinical and Psychosocial Factors: Report from the Sickle Cell Disease Implementation Consortium [published online ahead of print, 2020 May 25]. Am J Hematol. 2020;10.1002/ajh.25880. doi:10.1002/ajh.25880

2019

Masese RV, Bulgin D, Douglas C, Shah N, Tanabe P. Barriers and facilitators to care for individuals with sickle cell disease in central North Carolina: The emergency department providers' perspective. PLoS One. 2019 May 7;14(5):e0216414. doi: 10.1371/journal.pone.0216414. eCollection 2019. PMID: 31063506; PubMed Central PMCID: PMC6504169 (PubMed) (PMC6504169)

2018

Baumann, A. A., Belle, S. H., James, A., & King, A. A. (2018). Specifying sickle cell disease interventions: A study protocol of the Sickle Cell Disease Implementation Consortium (SCDIC). BMC Health Services Research,18(1). doi:10.1186/s12913-018-3297-1 (PubMed) (PMC6020469)

DiMartino, L. D., Baumann, A. A., Hsu, L. L., Kanter, J. , Gordeuk, V. R., Glassberg, J. , Treadwell, M. J., Melvin, C. L., Telfair, J. , Klesges, L. M., King, A. , Wun, T. , Shah, N. , Gibson, R. W., & Hankins, J. S. (2018). The Sickle Cell Disease Implementation Consortium: Translating evidence-based guidelines into practice for sickle cell disease. American Journal of Hematology. doi:10.1002/ajh.25282 (PubMed) (PMC6503654)


For more information on or access to any of the data used in these publications, please send an email to scdic-publications-subcommittee@rtiresearch.org.