2020
NHLBI Sickle Cell Disease Research meeting, August 10, 2020
Overview of the SCDIC and a Protocol to Improve ED Care using Individualized Pain Plans, Paula Tanabe, MD, Duke [presentation]
Early Findings from the Integration of mHealth into the Care of Patients with Sickle Cell Disease to Increase Hydroxyurea Utilization (mESH Study), Jane Hankins, MD, St. Jude [presentation]
Moving the Needle in Sickle Cell Care: Expert Consensus on What Determines an Unaffiliated Patient, Andrea Lamont, PhD, University of South Carolina [presentation]
Quality of Care Among Adolescents and Adults with SCD in the US: Analysis from the SCDIC, Julie Kanter, MD, University of Alabama [presentation]
Patient-Reported Outcomes in the SCDIC Registry, Marsha Treadwell, PhD, UCSF Benioff Children’s Hospital, Oakland [presentation]
Hydroxyurea is Associated with Miscarriage and Stillbirth in Sickle Cell Disease, Victor Gordeuk, MD, University of Illinois, Chicago [presentation]
2017
Living with Sickle Cell Disease--Patient Perspectives on Education and Self-Management (ISAAC) [presentation]